Special Thanks to Karen Frandsen for designing our logo. Used under license.
The Opitz Family Network website is developed by Jan Wharton, mother of a child
with FG syndrome and should not be considered as medical advice.
Nothing on this website is intended for diagnosis.
This is NOT the website of Dr.John M Opitz.
This is NOT the website of Dr.John M Opitz.
Your Subtitle text
"We share your hopes and dreams, your sadness, your happiness
and your excitement in the tiniest accomplishments."
and your excitement in the tiniest accomplishments."
The Opitz Family Network is a parent-run support network for all
individuals and families of children who have Opitz-G/BBB syndrome or FG
syndrome. The Opitz Family Network was established in June of 1994 with
the cooperation of Dr. John M. Opitz. We now have contact with over 300
families from Argentina, Australia, Brazil, Canada, Denmark, England,
Holland, Hungary, Ireland, Israel, Italy, Luxemburg, Mexico, New
Zealand, Northern Ireland, Norway, Scotland, Slovakia, Spain,
Switzerland, Wales, and the United States. We are listed with many
international, national, state and local agencies.
Our goal is to offer support and encouragement among families by sharing successes and ideas about feeding, surgeries, therapies, education, and the other individual concerns we have for our special children! We provide families with easy-to-read information about the syndromes, which they can then share with service providers. Parents can find the latest research, and items of interest about Opitz G/BBB and FG syndrome. We are now on Facebook, and also on Yahoogroups, where families can communicate with each other on a daily basis! If you are a family member, a friend, or work with an individual who has Opitz G/BBB or FG syndrome - come join us.
Our goal is to offer support and encouragement among families by sharing successes and ideas about feeding, surgeries, therapies, education, and the other individual concerns we have for our special children! We provide families with easy-to-read information about the syndromes, which they can then share with service providers. Parents can find the latest research, and items of interest about Opitz G/BBB and FG syndrome. We are now on Facebook, and also on Yahoogroups, where families can communicate with each other on a daily basis! If you are a family member, a friend, or work with an individual who has Opitz G/BBB or FG syndrome - come join us.
Most of the Families of the Opitz Family Network
Conference Salt Lake City 1998
